My son's case manager nurse asked for a list of all of his diagnoses. I just had to pull his Citizen's neuro summary and share with her. It took me less than two minutes.

A couple weeks ago my 13-year-old son was invited to be seen at a specialty clinic at Children’s Hospital Colorado for the first time. They asked me to have his pediatrician fax over a referral and multiple documents. I said to the nurse, I can do better than a fax. I have my child’s entire medical history available in Citizen. I shared his Citizen link with her and she then had access to everything organized and searchable through that link.

Just today I used images from Citizen to discuss my issues with a new provider. As you know, having many institutions trying to access my reports and images can be difficult… Having a central storage for these reports and images is critical when trying to keep at least 7 doctors up-to-date.

We are constantly in and out of emergency rooms with our daughter due to seizures. It is emotionally draining to have to explain her past over and over. Now, I can log-in to her Citizen account, share her history with the doctors and nurses, and stop repeating myself.

It is such a relief to know my extensive records are being collected in a central place and that they can be accessed when needed. I was diagnosed with bladder cancer this year and my records continue to grow. If I can help with any research that will find cures for these cancers, I want to participate. Knowing that my records can be accessed through Citizen makes it possible to help in such research studies.

A few years ago, I was asked to participate in a natural history study for our disorder. I had to take time off work, drive two hours, and leave my other kids at home. Honestly, it was too much. I like that with Citizen I can still contribute to research but don’t have to leave my home.