Rachel O'Hagan
SMA Supermom
CITIZEN HEALTH
Join the Citizen Health Changemaker Community — the people rare disease families trust.
A new ambassador program for the caregivers and patients who show up for their communities — and who are passionate about how technology can finally make this journey easier.
We're opening our first cohort. Start by just telling us about you.
Who's a Citizen Health Changemaker?
A Citizen Health Changemaker is a caregiver or patient who shows up for their rare disease community — the one other families already turn to. Some have big followings; some don't. Some lead foundations; some just share honestly from their own corner of the internet. What they share is lived experience, a real community, and the generosity to help the next family find their way.
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Sumaira Ahmed
Neuroimmune Superadvocate
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Effie Parks
Once Upon a Gene Podcast Host
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Kate Kostolansky
Brave Bears Inventor
Changemakers come together to help other families use Citizen Health's core products that make the lives of rare disease patients easier.
Citizen Health's AI teammate built by and for rare disease patients and families
What you do as a Citizen Health Changemaker
Share, in your own voice
Spread awareness of Citizen Health's core products in a raw and authentic way. (We help with the rest.)
Take a few hours a month
Spend about 2–3 hours a month on the program. Most members tell us they'd happily do more.
Represent Citizen
At conferences, on podcasts, in the rooms you're already in. It becomes part of who you are.
Use Ari as your teammate for rare disease
This only works if you genuinely use and love it. If you haven't used Ari yet, that's ok. We will give you time to use it and see how it benefits you.
What you get as a Citizen Health Changemaker
Production & editing help for your content
Social media coaching, and real reach behind your posts
A stipend — paid to you or a foundation, your choice
Connection with best rare disease leaders creating change
Invitation to exclusive Citizen Health Changemakers Summit (with travel covered for top members)
Free Ari subscription
Short FAQ
Do I need a big following to join the program?
No. We're looking for trusted, authentic voices — reach grows from there.
How big a time commitment is it?
About 2–3 hours a month.
If I'm a parent, do I have to show my child online?
No. Many of our members share their story without ever showing their family.
Is it paid?
Yes — every member has an individual arrangement, and you choose how your stipend is used.
When does it start?
We're opening a small first cohort soon. Apply or reach out to learn more.
