Waiting for treatments costs families precious moments that can't be recovered

Help accelerate cures for your neuromuscular community with Citizen Health and our groundbreaking partnership with the Critical Path Institute (C-Path)

Want to help drive cures? Register Your PAG >>

From hope to action: see how communities drive cures

Patient Advocacy Groups (PAGs) like yours are the bridge between patients and life-changing research. Discover how to transform medical records into FDA-accepted evidence that can speed drug development by 4+ years.

Citizen's PAG Offering > How it works and key differentiators

The C-Path Advantage

Our partnership with C-Path allows your community's data to directly influence:
*Clinical trial designs tailored to patient needs
*Validated endpoints recognized by FDA and other agencies
*Deeper understanding of disease progression
*Accelerated development of effective therapies

Register your PAG’s interest today

Join our waitlist of PAGs interested in Citizen Health. We will contact you following the submission to support next steps.

Currently, we're seeking partners for conditions including:
*Limb Girdle Muscular Dystrophy (LGMD)
*Charcot-Marie-Tooth (CMT) disease
*Myotonic Dystrophies
*Nemaline Myopathy
*Related neuromuscular conditionss

Organizations already making an impact

Citizen Health has already established partnerships with 60+ patient advocacy groups,20+ biopharma companies developing treatments, and leading academic institutions.

Why Partner with Citizen Health?

We’re your end-to-end platform for community support and research acceleration. With Citizen Health, you can unlock the power of your community’s health data.

1
Build a Global Patient Registry

Connect participants worldwide who join your registry on Citizen, building a comprehensive knowledge base to accelerate research for your community

2
Create Digital Natural History Studies

Transform medical records into regulatory-grade datasets that improve trial design and validate endpoints—all from a simple 5-minute patient sign-up

3
Generate Real-Time Community Insights

Track cohort statistics, disease trends, and treatment patterns across your community. Deploy surveys to gather patient feedback and experiences

4
Create Sustainable Revenue Streams

Generate revenue when your community's de-identified data advances commercial research, benefiting both PAG and participating patients

Contact Us

For questions or additional information:
Email: partnerships@citizen.health
Phone: 1-855-244-8493

"We are in a new era of science where genetic medicines are changing lives. The gaps now lie in understanding diseases more deeply, capturing patient input early, and designing clinical trials that truly work for patients."
- Nasha Fitter, Co-founder and Chief Business Officer of Citizen Health