Your Personalized NALCN-related disorder AI Advocate | Citizen Health - Get instant answers from every detail of your medical history

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Channeling Hope Foundation has partnered with Citizen to:

Gather medical records for you from all of your providers
Get answers from your records with an AI built for rare disease
Power research with your anonymized data, if you choose

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Channeling Hope Foundation has partnered with Citizen to:

Gather medical records for you from all of your providers
Get answers from your records with an AI tool built for rare disease
Power research with your anonymized data, if you choose

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Built for rare disease families, by rare disease families

Hear from Nasha, rare mom and co-founder of Citizen Health

Hear from Nasha, epilepsy mom and co-founder of Citizen Health

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What patient community members are saying

Casey Dawley

CACNA1A parent of Avery

If anyone hasn't used this yet, it is REVOLUTIONARY. I've used the AI Advocate to search and aggregate info about my child's complicated health history. Before this tool, I could see diagnoses and dates then do a lot of digging for info. Now, I type a question and wait and can validate the info through the references from within the actual medical records without searching thousands of pages!!! This tool was a life saver for prep for our next neuro appointment!

Megan

KCNT1 parent of Lexi

I’ve never been able to functionally use our medical records before... there were just too many documents from the hospital. Now, I can ask about Lexi’s diagnoses, medications, procedures, even specific dates... and it pulled everything out or gave me a summary. AMAZING! Very useful.

Brianna

FOXG1 parent of Penelope

During a doctor’s appointment, I pulled up the AI Advocate and had everything I needed for the issue we were discussing. Normally I’m flipping through a huge binder of records from three different states and multiple hospitals. Instead, I asked AI Advocate my questions, and immediately showed the doctor the response. I was mind blown - and immediately told other families, "You have to try this."

Lisa

LGS parent of Caleb

I asked the AI Advocate how many times Caleb has had pneumonia—and it gave me a number, a table, and even the location in the lung. Then I asked about broken bones, and it separated fractures from surgeries. I especially love that I can see the references behind the answers!

The hidden burden of playing medical detective

The reality

Calling multiple doctors, searching through patient portals, flipping through hundreds of pages...

The stakes

Emergency information, insurance deadlines, appointment prep, IEP development...

The exhaustion

Hours spent every week just trying to find basic information that is critical for care.

Try a better way

What if you could just ask your AI Advocate?

Your AI Advocate remembers every detail of your medical history so you don't have to.

Stop searching, start asking

Ask any question, like When was the last seizure? or What medications have had side effects? or What treatments have we tried before?

Preparation made easier

Get the medical insights you need to help with insurance appeals, IEP meetings, or second opinions.

Understanding made simple

AI Advocate can give you plain-language explanations to help decode medical terminology and organize complex health records.

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You and your family deserve an advocate

You've fought harder than any patient, parent, or caregiver should ever need to fight. You deserve tools built specifically for your journey.

Try it today

A phone showing the Citizen Health AI Advocate interface on the screen. The screen reads "What can I help you with today? You can try one of these ideas or you can ask something else."

Private. Secure. Personalized for You.

Make sense of care, control your data, and move forward with confidence.

Private
Privacy protected beyond requirements. Your medical records are only shared with your explicit consent. You can delete your data anytime.
Secure
We use HIPAA-compliant cloud services with end-to-end encryption protecting your data at rest and in transit.
Personalized
Your journey powers your insights. Data remains private in Citizen Health—no third-party AI access or training.

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Trusted by 100+ patient communities

We're proud to collaborate with these dedicated patient advocacy groups to better serve rare disease communities.

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Have more questions? We're here to support you.

support@citizenhealth.com

1-855-244-8493

The responses shown are simulated samples for demonstration purposes only. When you use AI Advocate, it provides personalized insights based on your actual medical records. AI Advocate is designed to help you understand and organize your medical information but does not provide medical advice, diagnosis, or treatment recommendations. Always consult with your healthcare provider before making any medical decisions. Your medical information remains private and secure within Citizen Health, and is not shared with third-party AI companies or used to train their algorithms.

Built for rare disease families, by rare disease families