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Help drive research
Project CASK has partnered with Citizen to:
  • Gather medical records for you from all of your providers
  • Get answers from your records with an AI built for rare disease
  • Power research with your anonymized data, if you choose
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Real Citizen Health community members who may not be affiliated with Project CASK

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Project CASK has partnered with Citizen to:
  • Gather medical records for you from all of your providers
  • Get answers from your records with an AI tool built for rare disease
  • Power research with your anonymized data, if you choose
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New Year, New Hope for you and ReNU! Join Citizen Health by 01/31/26 and be entered to win one of five $50 gift cards. View Official Rules →

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Built for rare disease families, by rare disease families

Hear from Nasha, rare mom and co-founder of Citizen Health
Hear from Nasha, epilepsy mom and co-founder of Citizen Health
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What patient community members are saying

Casey Dawley
CACNA1A Dad of Avery
If anyone hasn't used this yet, it is REVOLUTIONARY. I've used the AI Advocate to search and aggregate info about my child's complicated health history. Before this tool, I could see diagnoses and dates then do a lot of digging for info. Now, I type a question and wait and can validate the info through the references from within the actual medical records without searching thousands of pages!!! This tool was a life saver for prep for our next neuro appointment!
Brianna
FOXG1 Mom of Penelope
During a doctor’s appointment, I pulled up the AI Advocate and had everything I needed for the issue we were discussing. Normally I’m flipping through a huge binder of records from three different states and multiple hospitals. Instead, I asked AI Advocate my questions, and immediately showed the doctor the response. I was mind blown - and immediately told other families, "You have to try this."
Larissa
KMT2C Mom of Declan
The AI Advocate has been an absolute life changer… I have used this to gather his information to share with his school for an IEP. I have used it to update diagnosis codes that his insurance has missed in the past... The most exciting part of using this feature was that I was able to use it to help me craft an appeal to the insurance for an adaptive bicycle. Insurance denied it three times... AI Advocate helped me make sense of the medical jargon and the insurance coding to be able to advocate for my son and give him the tools that make his life a little easier.
Megan
KCNT1 Mom of Lexi
I’ve never been able to functionally use our medical records before... there were just too many documents from the hospital. Now, I can ask about Lexi’s diagnoses, medications, procedures, even specific dates... and it pulled everything out or gave me a summary. AMAZING! Very useful.
Maggie
CTNNB1 Mom of Abby
Citizen Health gave us a lifeline. Through the platform, we were able to gather and centralize all of Abby’s medical history, test results, therapy notes, and specialist reports in one secure, accessible place. Having everything organized in one spot made it so much easier during appointments, and removed a huge burden of paperwork and confusion. When it’s time for appointments or therapies, the AI Advocate helps us prepare — reminding us what questions to ask, helping us understand complex medical reports, and summarizing what each diagnosis and test result means in plain language. When IEP (Individualized Education Program) meetings come up, the AI Advocate helps us get ready by summarizing therapies, progress, and needs, in a way we can bring directly to teachers and therapists. It’s also helped us explain Abby’s condition — CTNNB1 syndrome — to friends and family in a way that’s clear and compassionate. That support has made such a difference emotionally and practically, and it’s hard to imagine navigating this journey without it.
Lisa
LGS Mom of Caleb
I asked the AI Advocate how many times Caleb has had pneumonia—and it gave me a number, a table, and even the location in the lung. Then I asked about broken bones, and it separated fractures from surgeries. I especially love that I can see the references behind the answers!

The hidden burden of playing medical detective

The reality
Calling multiple doctors, searching through patient portals, flipping through hundreds of pages...
The stakes
Emergency information, insurance deadlines, appointment prep, IEP development...
The exhaustion
Hours spent every week just trying to find basic information that is critical for care.
Try a better way

What if you could just ask your AI Advocate?

Your AI Advocate remembers every detail of your medical history so you don't have to.
Stop searching, start asking
Ask any question, like When was the last seizure? or What medications have had side effects? or What treatments have we tried before?
Preparation made easier
Get the medical insights you need to help with insurance appeals, IEP meetings, or second opinions.
Understanding made simple
AI Advocate can give you plain-language explanations to help decode medical terminology and organize complex health records.
Get started now

You and your family deserve an advocate

You've fought harder than any patient, parent, or caregiver should ever need to fight. You deserve tools built specifically for your journey.
Try it today
A phone showing the Citizen Health AI Advocate interface on the screen. The screen reads "What can I help you with today? You can try one of these ideas or you can ask something else."

Private. Secure. Personalized for You.

Make sense of care, control your data, and move forward with confidence.
  • Illustration of a doctor holding an envelope

    Private

    Privacy protected beyond requirements. Your medical records are only shared with your explicit consent. You can delete your data anytime.

  • Secure

    We use HIPAA-compliant cloud services with end-to-end encryption protecting your data at rest and in transit.

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  • Illustration of a user profile page

    Personalized

    Your journey powers your insights. Data remains private in Citizen Health—no third-party AI access or training.

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Trusted by 100+ patient communities

We're proud to collaborate with these dedicated patient advocacy groups to better serve rare disease communities.
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Have more questions?
We're here to support you.

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The responses shown are simulated samples for demonstration purposes only. When you use AI Advocate, it provides personalized insights based on your actual medical records. AI Advocate is designed to help you understand and organize your medical information but does not provide medical advice, diagnosis, or treatment recommendations. Always consult with your healthcare provider before making any medical decisions. Your medical information remains private and secure within Citizen Health, and is not shared with third-party AI companies or used to train their algorithms.