In the News | Press Highlights
PODCAST: Rethinking Rare: The Future of Rare Disease Research (S3:E5)
May 20, 2025
ACRO's Good Clinical Podcast (GCP)
See moreOn this episode, Tania Simoncelli (Vice President, Translational Impact and Engagement, Chan Zuckerberg Initiative) and Nasha Fitter (Co-founder & CBO, Citizen Health and Co-founder & CEO, FOXG1 Research Foundation) join forces to discuss how rare disease patient advocacy has transformed over time and how the biopharmaceutical industry should adapt to better meet the needs of today’s patients.
Read moreCitizen Health Partner to Support Drug Development and Long-Term Patient Outcomes in PKP2 Cardiomyopathy
May 7, 2025
See moreCitizen Health today announced a strategic partnership to support Rocket Pharmaceutical Inc.'s (Rocket Pharma) clinical and long-term data initiatives for arrhythmogenic cardiomyopathy (ACM) caused by mutations in the PKP2 gene.
Read morePODCAST: The Patient + RWD + AI = Solving the health equation
April 23, 2025
Aaron Kamauu, MD, MS, MPH and Matt Veatch
See moreFarid Vij, Co-founder and CEO at Citizen Health – We discussed advances in patient-level data access and re-defining practical precision-medicine to yield better patient outcomes. Health can be elusive for many patients, a complex "equation" with more than one answer, but RWD and AI are helping to solve this complexity.
Read moreMove Over Pharma: Patient-Led Organizations Advance Rare Disease Clinical Trials
March 24, 2025
Moe Alsumidaie
See moreThe panel, featuring Craig Lipset from the Decentralized Trials & Research Alliance, Deirdre BeVard of CSL Innovation GmbH, Heidi Bjornson-Pennell from the Chan Zuckerberg Initiative (CZI), Nasha Fitter of Citizen Health, Craig Martin from the Orphan Therapeutics Accelerator, and Tracey Sikora from the National Organization for Rare Disorders (NORD), explored how patients are evolving from passive participants to active leaders in drug development.
Read moreInterview With Nasha Fitter, Co-Founder and CBO of Citizen Health and Co-Founder and CEO of FOXG1 Research Foundation
February 13, 2025
Sarath
See moreWith a vision rooted in compassion and innovation, Nasha Fitter continues to inspire change and hope for those navigating the challenges of rare diseases. Check out Nasha Fitter’s exclusive interview with Eqvista.
Read moreViewPoints: Will Trump’s Stargate be the rocket fuel to propel AI in US healthcare?
February 12, 2025
Tina Tan
See moreFirstWord reached out to three companies, each offering different healthtech and digital health solutions but whose technologies are wholly dependent on a robust AI infrastructure, to get their initial views on Stargate, what challenges might the project face and critical factors that would help it achieve success.
Read moreState of privacy consent management requires more collaboration, says Sequoia Project
January 27, 2025
Andrea Fox
See moreThey "generously contributed expertise that spanned consumer, clinical, technical, policy and operational points of view so that we could present a unified view of a multi-faceted issue," Deven McGraw of Citizen Health, cochair, said in a statement.
Read moreThe Sequoia Project Publishes State of Consent Capabilities | Moving Toward Computable Consent: A Landscape Review
January 23, 2025
See moreThe Privacy & Consent workgroup was formed, led by co-chairs Deven McGraw of Citizen Health, and Dr. Steven Lane, chief medical officer of Health Gorilla.
Read moreRising Stars in Digital Health Global Startups: A Focus on Early-Stage Funding Success
January 18, 2025
Alex G. Lee
See moreAccording to the CB Insights State of Digital Health 2024 Report, 22 startups across the globe successfully raised early-stage funding (Angel, Pre-Seed, Seed, and Series A) in the fourth quarter of 2024.
Read moreVIDEO: Citizen Health: AI-Powered Platform for Rare Conditions
January 3, 2025
Madaline Spencer
See moreFarid Vij and Nasha Fitter, co-founders of Citizen Health, discuss how their organization helps rare disease patients.
Read morePODCAST: Empowering Patients with Data to Drive Drug Development
January 2, 2025
Daniel Levine
See moreWe spoke to Citizen Health Co-Founders Farid Vij and Nasha Fitter about the evolution of Citizen Health, what it will enable, and how it is helping shift power towards patients and their caregivers in the pursuit of new therapies.
Read moreAI / Machine Learning | November Round-Up
December 9, 2024
Luka Jelcic, Merouane Ounadjela, Eliza French, Katie Schneider, Graham Friedman, Rebecca Bair
See moreBy leveraging AI, Citizen Health aims to reduce therapy advancement timelines and provide personalized health insights for rare disease patients.
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