Your RARE‑X community now has access to Ari.

Global Genes and Citizen Health have partnered to power RARE‑X. Every family in your community can start using Ari, Citizen Health's AI teammate, today.

No cost to your organization.

Meet Ari

A new teammate for every family you serve

This is what you are activating for your community. Ari is an AI teammate built for rare disease, working with each family directly, at no cost to your organization.

Access to their health data, gathered from their providers, securely and in their control.
A personal teammate in Ari, an AI built for rare disease that drafts the insurance appeal.
Power research for your community, with anonymized data, only if families choose.

How Ari can help

Offload everything you’ve been holding in your head.

Symptom tracking

Text or voice. One thread. Captures everything together, not in five different apps.

Pattern detection

Ari watches frequency, intensity, time-of-day, and dose-change correlations — and proactively flags what's escalating.

Manage the MyChart mess

Labs, visits, letters, referrals — pulled without opening MyChart. Messages drafted in your voice. Ari pings you when your care team replies.

The to-do list

Scheduling appointments, following up on referrals, chasing prior auths, remembering what comes next. Ari handles the to-do list you've been carrying in your head.

What this means for you

What changes, and what does not

Everything about your research stays where it is.

What is new is what can sit next to it. For a community on both Citizen and RARE‑X, what families report can be connected to what their clinicians recorded. That combination is the kind of picture that can inform research and drug development, rather than two datasets nobody can join.

If your community is on RARE-X

Your research continues under Global Genes. Your existing RARE‑X consent carries over, and your data and your relationship with their team do not change. What is new is that every family in your community can start using Ari now, at no cost to your organization.

If your community is not on RARE-X

The same access is open to you today, on the same terms. And when RARE‑X arrives on the Citizen platform later this year, joining it becomes a separate and additive option rather than research infrastructure you build yourself.

What's included

Nothing you already run has to be turned off. Many groups run more than one platform

A co-branded sign-up page for your community

Your own referral link, so every family who joins through you is credited to your organization

No cost to your organization. Access is covered by the standard partner terms

Families start at no cost, with options to upgrade to a premium tier if they wish

Access to RARE‑X's library of validated disease surveys, once the research program is on the Citizen platform

Anything beyond this, including research datasets built from your community's records, is a separate conversation with our team.

Bring your questions

Come to the partner webinar

September 16 · date pending confirmation

What the partnership means for your community

A walkthrough of Ari with the Citizen partnerships team, and time for questions about activation, your families and your data.

FAQ

Is Ari replacing RARE-X?

No. RARE‑X remains an independent research program under Global Genes. Ari is a patient-facing tool, additive to the research work you already do.

What actually changes for our data?

RARE‑X keeps the instrument library it has spent years building, capturing symptom severity, progression and burden of illness in structured form. What is new is what can sit alongside it. Citizen Health can retrieve participants' medical records from more than 4,000 US institutions, so for a community on both platforms, those records can be connected to what families report. Communities can begin with RARE‑X surveys and add record collection as they grow.

Do our families have to use Ari to stay in RARE-X research?

Families will receive their RARE‑X surveys through Ari. Everything else Ari does, from gathering records to appointment prep, is entirely optional, and not using it changes nothing about their RARE‑X participation.

Do we have to leave a platform we are already on?

No. Many groups run more than one platform, and nothing has to be turned off.

What does it cost our organization?

Nothing. Families start at no cost too, and can upgrade to a premium tier if they wish.

What happens to data on Ari?

Patients control their research and sharing consents and can change them at any time. Research data is de-identified, and records are only shared if a family chooses to share them.

Trusted by 100+ patient advocacy communities

We're proud to collaborate with these dedicated patient advocacy groups to better serve rare disease communities.