Join the DMD Community Hub on Citizen Health

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Join the SMA & DMD community on Citizen to

Help drive research

The SMA & DMD Community Hub offers:
• One centralized place for all your medical records
• Personalized AI insights to navigate your care journey
• Direct impact on research that accelerates DMD breakthroughs
• A place for our communities to come together to drive insights and impact

Get started

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How Rachel uses Citizen

During my son's neurology appointment, I uploaded his latest scans into AI Advocate. The insights I received helped me understand what changes to expect even before meeting with the orthopedic surgeon.

This not only prepared me for the conversation ahead but also allowed me to focus on being present for my son during our hospital visits, instead of worrying about what might come next. AI Advocate gave me peace of mind when I needed it most

– Rachel, SMA Parent & Advocate

Try It

Built for rare disease families, by rare disease families

Hear from Nasha, rare mom and co-founder of Citizen Health

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New Feature

Meet your personal
DMD AI Advocate

Ask anything. Get personalized answers based on your medical journey. From "What's changed since we started deflazacort?" to "Help me understand these mobility changes"—this is relief in your pocket.

Get started

* These are samples for demonstration purposes. See disclaimer below.

Trusted By 100+ Patient Communities

We're proud to collaborate with these dedicated patient advocacy groups to better
serve caregiver & patient communities.

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KCNT1 Epilepsy with DNA double helix icon and tagline Hope is on the Horizon.

Silhouette of a child reaching towards a star entwined with a DNA strand inside a blue and green circle, with the text LandOn A Cure! Foundation below.

Chemical structure diagram of GABA with text 'Cure GABA & Variants' below it.

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Logos of Cure MDS with an orange and blue DNA strand and MECP2 Duplication Foundation with a stylized figure incorporating a blue DNA strand.

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Text 'SLC-6A1 Connect' with a microscope icon integrated between 'SLC' and '6A1'.

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Join Us

A Concierge Medical Navigator in Your Pocket

Your AI Advocate remembers every detail of your medical history so you don't have to

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Answer Questions From Your Records

Save Hours of Appointment Prep

Get Plain-Language Explanations

Get Your First Answer

You and Your Family Deserve an Advocate

You've fought harder than any patient, parent, or caregiver should ever need to fight. You deserve tools built specifically for your journey.

Try It Today

Private. Secure. Personalized for You.

Make sense of care, control your data, and move forward withconfidence.

Private

You own your data completely. Nothing is shared with third parties without your explicit consent.

Secure

We use HIPAA-compliant cloud services with end-to-end encryption protecting your data at rest and in transit.

Secure

HIPAA-compliant cloud services securely maintain information and all data is encrypted locally and on AWS.

Personalized

Your journey powers your insights. Data remains private in Citizen Health—no third-party AI access or training.

Get Started

Have questions about Citizen Health? 
We're here to support you.

support@citizenhealth.com

1-855-244-8493

The responses shown are simulated samples for demonstration purposes only. When you use AI Advocate, it provides personalized insights based on your actual medical records. AI Advocate is designed to help you understand and organize your medical information but does not provide medical advice, diagnosis, or treatment recommendations. Always consult with your healthcare provider before making any medical decisions. Your medical information remains private and secure within Citizen Health, and is not shared with third-party AI companies or used to train their algorithms.