Your advocate for research, care, & discovery

The SADS Platform on Citizen Health—where your cardiac journey finds expert guidance, contributes to breakthrough research, and turns questions into clarity.
Get early access

Early access for the first 300 people

When our community unites, we’re a voice for change. SADS and Citizen Health now amplify that voice through technology—delivering personal guidance for navigating care, while enabling research contributions. Protected through HIPAA-compliant cloud services with end-to-end encryption.
Including people with:
Arrhythmogenic Right Ventricular Cardiomyopathy (ARVC)  |  PKP2  |  Wolff-Parkinson-White (WPW)  |  PRKAG2  | 
LMNA  |  All SADS Conditions

Unlocking insights for you. Unlocking breakthroughs for all.
All on one platform.

First, we centralize everything

Our platform brings every record—cardiology, genetics, labs, and more—into one secure place you control. Organized, searchable, and ready for care, emergencies, and decisions. Essential for tracking genetic tests, ICD data, and family screening results.

Illustration of a user profile page

Then, answers about YOUR journey

With AI Advocate, ask questions like “What changed after my medication switch?” or “How has my ejection fraction trended?” Track PVC burden, EF changes, and symptoms, get summaries for new specialists, and surface key questions for your care—private, secure, and personal to you.

All while driving forward research

If you choose to contribute to research, your de-identified experience joins our community’s collective knowledge. Together, we’re building the real-world evidence base that could accelerate discoveries, improve risk assessment, and ultimately enhance care.

New Feature

Powering the future of genetic heart disease care

Your AI Advocate helps you make sense of your condition, easing the stress of a diagnosis with personalized guidance for navigating care—from early questions and EF trends to appointment prep. If you choose to contribute to research, your de-identified experience joins a collective resource that could help accelerate discoveries for PRKAG2, PKP2, BAG3, LMNA, and related conditions.

Get personalized guidance for navigating care and add your experience to a resource built for our community’s future.

* These are samples for demonstration purposes. See disclaimer below.
Special invitation
Be one of the first 300 patients to complete your profile and help shape the SADS Platform.
Get early access now

Private. Secure. Personalized for you.

Make sense of care, control your data, and move forward with confidence.
Private
You own your data completely. Nothing is shared with third parties without your explicit consent.
Secure
HIPAA-compliant cloud services securely maintain information and all data is encrypted locally and on AWS.
Personalized
YOUR journey powers YOUR insights. Data remains private in Citizen Health—no third-party AI access or training.
Power your journey

A New Way Forward

Our platform can represent an easier, more comprehensive path—where getting the support you need also advances the science we all need. By signing up, you could contribute to:
Understanding how cardiomyopathies progress differently
Identifying which treatments work best for specific variants
Accelerating development of targeted therapies
Building the evidence base for better care guidelines

Start now
A phone showing the Citizen Health AI Advocate interface on the screen. The screen reads "What can I help you with today? You can try one of these ideas or you can ask something else."

This moment could shape tomorrow.
Take 5 minutes. Change everything.

For years, our community has managed with fragmented records, isolated experiences, and unanswered questions.Our platform offers a new path—where records become clarity, care navigation adds guidance, and questions spark discoveries.Your experience matters. Your journey could illuminate patterns. Your participation might help accelerate the research that shapes tomorrow.5 minutes to begin. A future of possibilities.
Join the first 300

*

The responses shown are simulated samples for demonstration purposes only. When you use AI Advocate, it provides personalized insights based on your actual medical records. AI Advocate is designed to help you understand and organize your medical information but does not provide medical advice, diagnosis, or treatment recommendations. Always consult with your healthcare provider before making any medical decisions. Your medical information remains private and secure within Citizen Health, and is not shared with third-party AI companies or used to train their algorithms.