Join Citizen: The Leading Platform for Genetic Heart Disease Research

At Citizen Health, we're proud to be the selected platform partner for industry leaders and their research into genetic heart disease. By joining our platform now, you'll not only gain access to your complete health records but also position yourself to be part of groundbreaking research initiatives and future clinical trials.

Help power active programs furthering treatment options for genetic cardiomyopathies like PKP2, BAG3, PRKAG2, LMNA and more.

Our trusted partners and community

Industry partners, Advocacy Groups and Academic Institutions have chosen Citizen Health as their platform partner for research. Early participation in Citizen's platform ensures:

  • Your health data is organized and readily available
  • You're positioned to participate in future research opportunities
  • Your de-identified data can contribute to advancing treatments with your consent
  • You maintain complete control over your data-sharing preferences
How It Works
  1. Simple, Secure Sign-Up
    Register in just 5 minutes from the comfort of your home. Enter basic demographic information and a list of providers where you have received care.
  2. Get Access To Your Health Data
    Our free service automatically collects and organizes your medical records from all providers into one secure digital profile for US patients. We use HIPAA-compliant cloud services to maintain patient information and all data is encrypted locally.
  3. You Stay in Control
    Access your complete medical history, choose if and how to share your data with whomever you choose.
  4. Power Research Making A Difference Today
    ‍    If you consent, your de-identified data from your medical records is shared with researchers actively working on treatments that could benefit you and your loved ones.

Our trusted partners and community

We work with patient advocacy groups, academic medical centers, researchers, and patient communities to accelerate rare disease research and help patients at each step of their care journey.

Why Join Now?

Be Prepared

Having your medical records organized in Citizen's platform positions you for future research opportunities

Make an Impact

Your de-identified data can help researchers better understand genetic cardiomyopathies and accelerate treatment development

Stay Informed

Get updates about ongoing research and development in the genetic heart disease space and first access to clinical trials

Maintain Control

You always decide if and how your data is shared

Our Impact in Numbers

12,000+
rare disease patients served
60+
advocacy groups partnered
35+
research abstracts
and posters
20+
biopharma partnerships
advancing treatment development

Proven Track Record in Rare Disease Research

Our commitment to rare disease communities has already made significant impacts. From powering breakthrough FDA regulatory filings with Praxis Precision Medicines to being recognized at the White House through the testimony of our Co-Founder, Nasha Fitter, we're dedicated to accelerating research through patient-centered data collection.

Your Data Can Be Your Currency

Share your de-identified health data with researchers through Citizen Health and earn money whenever your data is part of a paid research study. Sign up today and you could earn $250 through current research initiatives.

Your Privacy and Security is Our Priority

We understand the sensitivity of your health information.
That's why we've built our platform with privacy and security at its core:

Icon displaying encryption and security
All data is encrypted both locally and in transit
Cloud Computing Icon Image
We use HIPAA-compliant cloud services through Amazon Web Services (AWS)
A graphic icon depicting control over data sharing preferences
You maintain complete control over your data-sharing preferences
An icon depicting computer security
Our systems undergo regular security audits and compliance reviews

Meet the experts leading data security and privacy
at Citizen and for the Industry

Photograph of Deven McGraw, Chief Regulatory and Privacy Officer at Citizen Health
Deven McGraw
Chief Regulatory & Privacy Officer
Photo of Daniel Wang the Chief Technology Officer at Citizen Health
Daniel Wang
Chief Technology Officer

International Patient Support

We welcome international patients to join Citizen! While we can't collect records for you outside of the US, you can upload your own health data to contribute to research and make a difference today. For support or questions, contact our team at support@citizen.health

Take Action Today

Join our platform to:

  • Gain free access to all your compiled medical data
  • Position yourself for future research opportunities
  • Eligible patients earn a $50 welcome bonus upon completing your profile
  • Share in revenue when your data contributes to research programs
  • Stay informed about the latest research developments
  • Help create treatments to benefit you and family members
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