Welcome to MARMY

The Grassroots Special Needs Mom Army

What MARMY is

A trusted network of rare disease parents and caregivers helping families get faster, clearer answers with AI Advocate—and growing research-ready cohorts through authentic, peer-to-peer support. Your voice makes families feel seen. Together, we reduce overwhelm, share knowledge, and create breakthroughs.

Help families find clarity faster. Be part of the Rare Disease Mom Army and make an immediate impact in your community.

What you’ll do

Use Citizen Health’s AI Advocate to turn real questions into helpful, shareable answers

Welcome newly diagnosed families with empathy and practical guidance

Spark momentum through simple campaigns and referrals

What you’ll get

Ready-to-use toolkits for quick action

A personal link to track your impact

A supportive network of peers

Recognition, badges, and rewards that reflect your contributions

Who can join?

Use Citizen Health’s AI Advocate to turn real questions into helpful, shareable answers

Welcome newly diagnosed families with empathy and practical guidance

Spark momentum through simple campaigns and referrals

Some of our Moms

Help newly diagnosed families feel supported from day one.

Turn real community questions into shareable AI‑generated "artifacts" that reduce overwhelm and misinformation.

Grow your community’s research readiness by guiding families to join Citizen Health.

Role options

Pick 1-2 to start that fits your life right now.  Every contribution matters.

Share & support

Post helpful AI Advocate answers (“artifacts”) in groups or DMs.

Welcome & onboard

Guide recently diagnosed families through sign-up and first use.

Spark conversations

Start threads about everyday challenges and how AI Advocate helps.

Virtual meetups

Host a short coffee/Zoom to show how it works.

Time ask:

~1 hr/week (more if you want). Every bit helps.

How this works

Grab your referral link +

toolkit (copy-ready posts & graphics).

Start using AI Advocate:

ask questions and save answers you can share

Share online

Post copy-ready posts or your own experience

Go grassroots!

Tell moms in your school and community.

Start creating your own content to share

Get Started

What patient community members are saying

Megan

KCNT1 parent of Lexi

I’ve never been able to functionally use our medical records before... there were just too many documents from the hospital. Now, I can ask about Lexi’s diagnoses, medications, procedures, even specific dates... and it pulled everything out or gave me a summary. AMAZING! Very useful.

Brianna

FOXG1 parent of Penelope

During a doctor’s appointment, I pulled up the AI Advocate and had everything I needed for the issue we were discussing. Normally I’m flipping through a huge binder of records from three different states and multiple hospitals. Instead, I asked AI Advocate my questions, and immediately showed the doctor the response. I was mind blown - and immediately told other families, "You have to try this."

Larissa

KMT2C parent of Declan

The AI Advocate has been an absolute life changer...I have used this to gather his information to share with his school for an IEP....I have used it to update diagnosis codes that his insurance has missed in the past.....The most exciting part of using this feature was that I was able to use it to help me craft an appeal to the insurance for an adaptive bicycle...