In the News | Citizen Health Press Highlights

Together, the organizations will establish a partnership focused on neuromuscular disorders, including limb-girdle muscular dystrophies (LGMDs), Charcot-Marie-Tooth (CMT) disease, nemaline myopathy (NM), myotonic dystrophies, and related conditions.

On this episode, Tania Simoncelli (Vice President, Translational Impact and Engagement, Chan Zuckerberg Initiative) and Nasha Fitter (Co-founder & CBO, Citizen Health and Co-founder & CEO, FOXG1 Research Foundation) join forces to discuss how rare disease patient advocacy has transformed over time and how the biopharmaceutical industry should adapt to better meet the needs of today’s patients.

Citizen Health today announced a strategic partnership to support Rocket Pharmaceutical Inc.'s (Rocket Pharma) clinical and long-term data initiatives for arrhythmogenic cardiomyopathy (ACM) caused by mutations in the PKP2 gene.

Farid Vij, Co-founder and CEO at Citizen Health – We discussed advances in patient-level data access and re-defining practical precision-medicine to yield better patient outcomes. Health can be elusive for many patients, a complex "equation" with more than one answer, but RWD and AI are helping to solve this complexity.

The panel, featuring Craig Lipset from the Decentralized Trials & Research Alliance, Deirdre BeVard of CSL Innovation GmbH, Heidi Bjornson-Pennell from the Chan Zuckerberg Initiative (CZI), Nasha Fitter of Citizen Health, Craig Martin from the Orphan Therapeutics Accelerator, and Tracey Sikora from the National Organization for Rare Disorders (NORD), explored how patients are evolving from passive participants to active leaders in drug development.

With a vision rooted in compassion and innovation, Nasha Fitter continues to inspire change and hope for those navigating the challenges of rare diseases. Check out Nasha Fitter’s exclusive interview with Eqvista.

FirstWord reached out to three companies, each offering different healthtech and digital health solutions but whose technologies are wholly dependent on a robust AI infrastructure, to get their initial views on Stargate, what challenges might the project face and critical factors that would help it achieve success.

They "generously contributed expertise that spanned consumer, clinical, technical, policy and operational points of view so that we could present a unified view of a multi-faceted issue," Deven McGraw of Citizen Health, cochair, said in a statement.

The Privacy & Consent workgroup was formed, led by co-chairs Deven McGraw of Citizen Health, and Dr. Steven Lane, chief medical officer of Health Gorilla.

According to the CB Insights State of Digital Health 2024 Report, 22 startups across the globe successfully raised early-stage funding (Angel, Pre-Seed, Seed, and Series A) in the fourth quarter of 2024.

Farid Vij and Nasha Fitter, co-founders of Citizen Health, discuss how their organization helps rare disease patients.

We spoke to Citizen Health Co-Founders Farid Vij and Nasha Fitter about the evolution of Citizen Health, what it will enable, and how it is helping shift power towards patients and their caregivers in the pursuit of new therapies.